Advocating for a haven
At Handbasket Haven, we're dedicated to creating meaningful change for the rare disease community in Washington State. Discover our core advocacy goals and how we're working to ensure every family has the support and resources they deserve.
Our advocacy goals
We are passionately advocating for critical changes to support individuals and families affected by rare diseases. Our focus is on establishing vital infrastructure and ensuring comprehensive care.
Rare disease advisory council
We champion the creation of a Washington State Rare Disease Advisory Council to provide guidance and oversight.
Early genetic screening
Promoting early genetic screening for timely diagnosis and intervention for rare genetic abnormalities.
Caregiver & community support
Building robust support systems and community resources for caregivers and affected families.
Key issues & legislation
Understanding the critical issues is the first step towards making a difference. Here's what we're focusing on to improve the lives of those with rare diseases.
Legislative focus
We are actively working on legislative efforts to establish a Rare Disease Advisory Council in Washington State, improve rare disease recognition, and advocate for tailored treatments, therapies, and resources. We believe in providing robust education in the medical field to ensure medical teams understand that rare patients need personalized care, not standard treatments for healthy individuals.
How you can help
Your involvement is crucial. Stay informed about the latest developments, contact your local politicians to voice your support, and help us build crucial support groups and infrastructure within the rare disease community. Together, we can make a significant impact.
